Featured
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Review Article
| Open AccessExploring the ethics of genetic prioritisation for COVID-19 vaccines
- Jago Bruce
- & Stephanie B. Johnson
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Comment
| Open AccessComment on Informing relatives of their genetic risk: an examination of the Belgian context
- Aisling de Paor
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Article |
Informing relatives of their genetic risk: an examination of the Belgian legal context
- Amicia Phillips
- , Thomas Bronselaer
- & Stefaan Callens
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Article |
A tailored approach to informing relatives at risk of inherited cardiac conditions: results of a randomised controlled trial
- Lieke M. van den Heuvel
- , Yvonne M. Hoedemaekers
- & Imke Christiaans
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Article
| Open AccessAttitudes among parents of persons with autism spectrum disorder towards information about genetic risk and future health
- Jarle Johannessen
- , Terje Nærland
- & Ole A. Andreassen
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Article
| Open AccessGenomic health data generation in the UK: a 360 view
- Elizabeth Ormondroyd
- , Peter Border
- & Andrew Papanikitas
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Article
| Open AccessThe ethical landscape(s) of non-invasive prenatal testing in England, France and Germany: findings from a comparative literature review
- Adeline Perrot
- & Ruth Horn
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Article
| Open AccessWhat is a ‘serious’ genetic condition? The perceptions of people living with genetic conditions
- Felicity K. Boardman
- & Corinna C. Clark
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Australian human research ethics committee members’ confidence in reviewing genomic research applications
- Ryan Pysar
- , Courtney K. Wallingford
- & Aideen M. McInerney-Leo
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Article |
Non-invasive prenatal testing (NIPT) and pregnant women’s views on good motherhood: a qualitative study
- Elisa Garcia
- , Lidewij Henneman
- & Danielle R. M. Timmermans
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Article
| Open AccessCascade screening for beta-thalassemia in Pakistan: development, feasibility and acceptability of a decision support intervention for relatives
- Shenaz Ahmed
- , Hussain Jafri
- & Mushtaq Ahmed
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Article
| Open AccessStakeholder engagement to ensure the sustainability of biobanks: a survey of potential users of biobank services
- Corinna Klingler
- , Magdaléna von Jagwitz-Biegnitz
- & Cornelia Specht
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Article
| Open AccessBalancing scientific interests and the rights of participants in designing a recall by genotype study
- Deborah Mascalzoni
- , Roberta Biasiotto
- & Andrew A. Hicks
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Article
| Open AccessInternational transfers of personal data for health research following Schrems II: a problem in need of a solution
- Dara Hallinan
- , Alexander Bernier
- & Stéphanie Rennes
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Article
| Open AccessHow do non-geneticist physicians deal with genetic tests? A qualitative analysis
- Laurent Pasquier
- , Guy Minguet
- & Grégoire Moutel
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Article |
The impact of unsolicited findings in clinical exome sequencing, a qualitative interview study
- Vyne van der Schoot
- , Simone J. Viellevoije
- & Anke J. M. Oerlemans
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Article |
Stakeholder views on opportunistic genomic screening in the Netherlands: a qualitative study
- Anke Woudstra
- , Wybo Dondorp
- & Guido de Wert
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Article |
Identifying the nature and extent of public and donor concern about the commercialisation of biobanks for genomic research
- Christine R. Critchley
- , Jennifer Fleming
- & Ian Kerridge
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Policy |
ESHG warns against misuses of genetic tests and biobanks for discrimination purposes
- Francesca Forzano
- , Maurizio Genuardi
- & Yves Moreau
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Article
| Open AccessThe ethics of genomic medicine: redefining values and norms in the UK and France
- Marie Gaille
- , Ruth Horn
- & Carine Vassy
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Article
| Open AccessReflections on dynamic consent in biomedical research: the story so far
- Harriet J. A. Teare
- , Megan Prictor
- & Jane Kaye
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Article |
Perceptions of best practices for return of results in an international survey of psychiatric genetics researchers
- Gabriel Lázaro-Muñoz
- , Laura Torgerson
- & Stacey Pereira
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Article
| Open AccessPerceptions of genetic testing in patients with hereditary chronic pancreatitis and their families: a qualitative triangulation
- Regina Müller
- , Ali A. Aghdassi
- & Sabine Salloch
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Non-invasive prenatal testing (NIPT): societal pressure or freedom of choice? A vignette study of Dutch citizens’ attitudes
- Adriana Kater-Kuipers
- , Iris M. Bakkeren
- & Eline M. Bunnik
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Article |
Gene selection for the Australian Reproductive Genetic Carrier Screening Project (“Mackenzie’s Mission”)
- Edwin P. Kirk
- , Royston Ong
- & Martin B. Delatycki
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Article |
Development and validation of a measure of comprehension of genomic screening—negative results (CoG-NR)
- Gail E. Henderson
- , Molly Ewing
- & Teresa P. Edwards
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Article |
Judging in the genomic era: judges’ genetic knowledge, confidence and need for training
- Fatos Selita
- , Vanessa Smereczynska
- & Yulia Kovas
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Article |
Assessing the stability of biobank donor preferences regarding sample use: evidence supporting the value of dynamic consent
- Joel E. Pacyna
- , Jennifer B. McCormick
- & Richard R. Sharp
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Comment |
The GDPR, secondary research purposes and global data sharing—one-wheel too many
- Sirpa Soini
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Article
| Open AccessWillingness to donate genomic and other medical data: results from Germany
- Torsten H. Voigt
- , Verena Holtz
- & Barbara Prainsack
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How the “control-fate continuum” helps explain the genetic testing decision-making process: a grounded theory study
- Bettina M. Zimmermann
- , David Shaw
- & Insa Koné
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Review Article
| Open AccessDisruptive and avoidable: GDPR challenges to secondary research uses of data
- David Peloquin
- , Michael DiMaio
- & Mark Barnes
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Article |
Broad consent in practice: lessons learned from a hospital-based biobank for prospective research on genomic and medical data
- Gaia Barazzetti
- , Francesca Bosisio
- & Brenda Spencer
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Article
| Open AccessMembers of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data
- Anna Middleton
- , Richard Milne
- & Katherine I. Morley
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Viewpoint |
Lessons from Ciência Viva: how teaching human genetics to XXIst century students must go beyond the classroom
- Meghan Quint
- & Olga Amaral
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Policy
| Open AccessESHG PPPC Comments on postmortem use of genetic data for research purposes
- Florence Fellmann
- , Emmanuelle Rial-Sebbag
- & Francesca Forzano
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Article
| Open AccessGP-provided couple-based expanded preconception carrier screening in the Dutch general population: who accepts the test-offer and why?
- Juliette Schuurmans
- , Erwin Birnie
- & Mirjam Plantinga
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Article |
Ethical, legal, and social issues (ELSI) in rare diseases: a landscape analysis from funders
- Adam L. Hartman
- , Anneliene Hechtelt Jonker
- & Rosario Isasi
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Article
| Open AccessRethinking the ethical principles of genomic medicine services
- Stephanie B. Johnson
- , Ingrid Slade
- & Mackenzie Graham
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Review Article
| Open AccessStakeholders’ perspectives on the post-mortem use of genetic and health-related data for research: a systematic review
- Marieke A. R. Bak
- , M. Corrette Ploem
- & Dick L. Willems
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Viewpoint |
Germline genome editing: public dialogue is urgent but not self-evident
- Boy Vijlbrief
- , Sam Riedijk
- & Robert Hofstra
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Brief Communication
| Open AccessGenetic discrimination by Australian insurance companies: a survey of consumer experiences
- Jane Tiller
- , Susan Morris
- & Paul Lacaze
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Viewpoint |
After the fact—the case of CRISPR babies
- Martin Sand
- , Annelien L. Bredenoord
- & Karin R. Jongsma
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Viewpoint |
Searching for secondary findings: considering actionability and preserving the right not to know
- Bertrand Isidor
- , Sophie Julia
- & Marie Vincent
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Article
| Open AccessAttitudes of blood donors to their sample and data donation for biobanking
- Vera Raivola
- , Karoliina Snell
- & Jukka Partanen
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Viewpoint |
Population genetic screening: current issues in a European country
- Laurent Pasquier
- , Bertrand Isidor
- & Grégoire Moutel
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Article |
Trends in BRCA testing and socioeconomic deprivation
- Antony P. Martin
- , Gabriel Pedra
- & Kathryn Lynn Greenhalgh