As patients with juvenile rheumatologic conditions become adults, they transition from carer-led health care to autonomy in self-management. This health-care transition process is underappreciated by rheumatologists, according to an online survey of 134 of their young patients in the USA. Less than half of respondents reported talking to their rheumatologist about adult health-care needs, and only about one-third of patients discussed transferring to adult medicines.
ORIGINAL RESEARCH PAPER
Wells, C. K. et al. Youth report of healthcare transition counseling and autonomy support from their rheumatologist. Pediatric Rheumatology 10, 36 (2012)
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Poor health-care transition planning for adolescent patients. Nat Rev Rheumatol 9, 2 (2013). https://doi.org/10.1038/nrrheum.2012.215
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DOI: https://doi.org/10.1038/nrrheum.2012.215