New guidelines from EULAR and the Paediatric Rheumatology European Society recommend a set of quality standards for the care of young adults with childhood-onset rheumatic diseases during their transfer from paediatric to adult rheumatology care providers. Can the application of these guidelines prevent patients from getting lost in the system?
This is a preview of subscription content, access via your institution
Relevant articles
Open Access articles citing this article.
-
Development and validation of the RACER (Readiness for Adult Care in Rheumatology) transition instrument in youth with juvenile idiopathic arthritis
Pediatric Rheumatology Open Access 05 June 2021
Access options
Access Nature and 54 other Nature Portfolio journals
Get Nature+, our best-value online-access subscription
$29.99 / 30 days
cancel any time
Subscribe to this journal
Receive 12 print issues and online access
$209.00 per year
only $17.42 per issue
Buy this article
- Purchase on Springer Link
- Instant access to full article PDF
Prices may be subject to local taxes which are calculated during checkout
References
Jensen, P. T. et al. Quantitative evaluation of a pediatric rheumatology transition program. Pediatr. Rheumatol. Online J. 13, 17 (2015).
Hazel, E., Zhang, X., Duffy, C. M. & Campillo, S. High rates of unsuccessful transfer to adult care among young adults with juvenile idiopathic arthritis. Pediatr. Rheumatol. 8, 2 (2010).
Son, M. B., Sergeyenko, Y., Guan, H. & Costenbader, K. H. Disease activity and transition outcomes in a childhood-onset systemic lupus erythematosus cohort. Lupus 25, 1431–1439 (2016).
Foster, H. E. et al. EULAR/PReS standards and recommendations for the transitional care of young people with juvenile-onset rheumatic diseases. Ann. Rheum. Dis. http://dx.doi.org/10.1136/annrheumdis-2016-210112 (2016).
American Academy of Pediatrics et al. Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics 128, 182–200 (2011).
Blum, R. W. et al. Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine. J. Adolesc. Health 14, 570–576 (1993).
Chira, P., Ronis, T., Ardoin, S. & White, P. Transitioning youth with rheumatic conditions: perspectives of pediatric rheumatology providers in the United States and Canada. J. Rheumatol. 41, 768–779 (2014).
Zisman, D. et al. US adult rheumatologists perspective on the transition process for young adults with rheumatic conditions [abstract]. Arthritis Rheumatol. 67 (Suppl. 10), 1277 (2015).
Yazdany, J. et al. A quality indicator set for systemic lupus erythematosus. Arthritis Rheum. 61, 370–377 (2009).
Fair, C. et al. International and interdisciplinary identification of health care transition outcomes. JAMA Pediatr. 170, 205–211 (2016).
Acknowledgements
E.F.L. is supported in part by the National Center for Advancing Translational Sciences, National Institutes of Health (NIH), through the University of California, San Francisco (UCSF) Clinical & Translational Science Institute grant #UL1 TR001872, and the UCSF Hellman Fellows Fund. E.D.M. acknowledges support from the NIH, the Systemic JIA Foundation, and the UCSF-Stanford Arthritis Center of Excellence, funded in part by the Arthritis Foundation.
Author information
Authors and Affiliations
Corresponding authors
Ethics declarations
Competing interests
The authors declare no competing financial interests.
PowerPoint slides
Rights and permissions
About this article
Cite this article
Lawson, E., Mellins, E. Navigating the transition from paediatric to adult care. Nat Rev Rheumatol 13, 138–139 (2017). https://doi.org/10.1038/nrrheum.2017.16
Published:
Issue Date:
DOI: https://doi.org/10.1038/nrrheum.2017.16