Researchers in Italy have interviewed patients with severe disability due to progressive multiple sclerosis (MS) about what they felt were their unmet needs. Patients highlighted difficulties maintaining personal hygiene as a major concern, and many described psychosocial stress including feeling burdensome to their families and carers, or feeling lonely. Coping with disability arose as a more pressing issue for patients with severe MS than did end-of-life care.
References
Borreani, C. et al. Unmet needs of people with severe multiple sclerosis and their carers: qualitative findings for a home-based intervention. PLoS ONE 9, e109679
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Survey uncovers the needs of people with severe MS. Nat Rev Neurol 10, 611 (2014). https://doi.org/10.1038/nrneurol.2014.199
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DOI: https://doi.org/10.1038/nrneurol.2014.199