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Pulse oximetry screening for critical congenital heart disease in planned out of hospital births and the incidence of critical congenital heart disease in the Plain community

Journal of Perinatology volume 36, pages 1088–1091 (2016)Cite this article

Subjects

Abstract

Objective:

This study evaluated pulse oximetry screening (POS) for critical congenital heart disease (CCHD) in planned out of hospital births with special attention to births in Plain communities (Amish, Mennonite and similar).

Study Design:

Wisconsin out of hospital births in 2013 and 2014 were evaluated. Care providers were supplied with and trained in the use of pulse oximeters for CCHD screening. State records were reviewed to identify deaths and hospital admissions due to CCHD in this population.

Results:

Detailed information on POS was available in 1616 planned out of hospital births. Seven hundred and ninety-nine were from the Plain community. In total, 1584 babies (98%) passed their POS, 16 infants (1%) failed and 16 (1%) were not screened. Five infants from the Plain community had CCHD and three were detected by POS.

Conclusion:

POS for CCHD can be successfully implemented outside the hospital setting and plays a particularly important role in communities with high rates of CCHD and where formal prenatal screening is uncommon.

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Acknowledgements

This project was supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number H46Mc24057, Critical Congenital Heart Disease Newborn Screening Demonstration Program. AY’s participation was supported in part by an appointment to the Applied Epidemiology Fellowship Program administered by the Council of State and Territorial Epidemiologists (CSTE) and funded by the Centers for Disease Control and Prevention (CDC) Cooperative Agreement Number 1U380T000143-01. The first draft of the manuscript was written by KM, pediatrics resident at the University of Wisconsin. This project was made possible by the efforts of many contributors. We are grateful to the families who participated and to the Wisconsin Guild of Midwives for their support. Special thanks are extended to the following individuals: Marijke van Roojen, President, Wisconsin Guild of Midwives, Midwifery Clinical Education Coordinator, Southwest Wisconsin Technical College; Jody Belling, Research Nurse Coordinator, Department of Pediatrics, University of Wisconsin School of Medicine and Public Health; Jens C Eickhoff, Senior Scientist, Department of Biostatistics and Medical Informatics, University of Wisconsin School of Medicine and Public Health; Sharon Fleischfresser, Medical Director, Children and Youth with Special Health Care Needs, Wisconsin Department of Health Services; Elizabeth Oftedahl, Epidemiologist, Children and Youth with Special Health Care Needs, Wisconsin Department of Health Services; Michael Payne, Web Developer/Analyst, Information Architecture/Public Health Information Network, Wisconsin Department of Public Health Office of Health Informatics; Mei Baker, Co-Director, Newborn Screening Laboratory, Wisconsin State Laboratory of Hygiene; Constanza Bravo, University of Wisconsin, Department of Geography.

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Authors and Affiliations

  1. Department of Pediatrics, University of Wisconsin School of Medicine and Public Health, , Madison, WI, USA

    K K Miller, E M Goetz & J S Hokanson

  2. NorthShore University Health Systems, , Skokie, IL, USA

    K S Vig

  3. Wisconsin Guild of Midwives,

    G Spicer

  4. Wisconsin Department of Health Services,

    G Spicer

  5. a Division of the Seattle Indian Health Board, Urban Indian Health Institute, , Seattle, WA, USA

    A J Yang

Authors
  1. K K Miller
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  2. K S Vig
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  3. E M Goetz
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  4. G Spicer
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  5. A J Yang
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  6. J S Hokanson
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Corresponding author

Correspondence to J S Hokanson.

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Supplementary Information accompanies the paper on the Journal of Perinatology website

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Miller, K., Vig, K., Goetz, E. et al. Pulse oximetry screening for critical congenital heart disease in planned out of hospital births and the incidence of critical congenital heart disease in the Plain community. J Perinatol 36, 1088–1091 (2016). https://doi.org/10.1038/jp.2016.135

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