Other areas of biomedical research should emulate new standards from the International Society for Stem Cell Research highlighting the importance of sharing materials, data and research rights, and requiring fair global access to resulting diagnostics and therapies.
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References
Daley, G.Q. et al. Science 315, 603–604 (2007).
http://www.isscr.org/guidelines/ (accessed March 2007).
http://ori.dhhs.gov/education/ (accessed November 2006).
Office of Science and Technology Policy. Fed Reg 65, 76260–76264 (2000).
http://grants.nih.gov/grants/policy/nihgps_2003/NIHGPS_Part7.htm#_Toc54600131 (accessed March 2007).
http://grants.nih.gov/grants/guide/notice-files/NOT-OD-03–032.html (accessed March 2007).
http://www.nih.gov/news/researchtools/index.htm (accessed March 2007).
Department of Health and Human Services, the National Institutes of Health. Fed. Reg. 64, 72090–72096 (1999).
Duke University v. Madey, 307 F.3d 1331, 64 U.S.P.Q 2d 1737 (Fed. Cir. 2002).
Avorn, J. N. Engl. J. Med. 355, 2169–2171 (2006).
Merton, R.K. The Sociology of Science: Theoretical and Empirical Investigations (University of Chicago Press, Chicago, 1973).
Blumenthal, D. et al. Acad. Med. 81, 137–145 (2006).
Jasanoff, S. Designs on Nature (Princeton University Press, Princeton, NJ, 2005).
Marshall, E. Science 248, 952–957 (1990).
Blumenthal, D., Campbell, E.G., Anderson, M.S., Causino, N. & Louis, K.S. J. Am. Med. Assoc. 277, 1224–1228 (1997).
Campbell, E.G. et al. J. Am. Med. Assoc. 287, 473–481 (2002).
Grushcow, J. Univ. Chicago J. Legal Stud. 33, 59–84 (2004).
Walsh, J.P., Cho, C. & Cohen, W.M. Science 309, 2002–2003 (2005).
Vogeli, C. et al. Acad. Med. 81, 128–136 (2006).
Committee on Intellectual Property Rights in Genomic and Protein Research and Innovation. National Research Council. Reaping the Benefits of Genomic and Proteomic Research: Intellectual Property Rights, Innovation and Public Health (National Academy of Sciences, Washington, DC, 2006). http://www.nap.edu/catalog.php?record_id=11487#toc (accessed March 2007).
45 CFR 46.111(a)(2); 21 CFR 456.111(a)(2).
Taylor, P.L. Sci. Eng. Ethics 11, 589–616 (2005).
http://www.kentlaw.edu/honorsscholars/projects.html (accessed March 2007).
Greenberg et al. v. Miami Children's Hospital Research Institute, 264 F.Supp.2d 1064 (S.D Fla. 2003).
Moore v. Regents of the University of California. 51 Cal. 3d 134 (1990).
National Commission for the Protection of Human Subjects. Fed. Reg. 44, 23192–23197 (1979).
Childress, J.F., Meslin, E.M. & Shapiro, H.T. Belmont Revisited: Ethical Principles for Research with Human Subjects (Georgetown University Press, Washington, DC, 2005).
Emanuel, E.J., Wendler, D. & Grady, C. J. Am. Med. Assoc. 283, 2701–2711 (2000).
Cho, M.K., Illangasekare, S., Weaver, M.A., Leonard, D.G.B. & Merz, J.F. J. Mol. Diagn. 5, 3–8 (2003).
Zoloth, L. Am. J. Bioeth. 2, 3–11 (2002).
Kuhn, V.T. Am. J. Bioeth. 2, 1–2 (2002).
Porter, G., Denning, C., Plomer, A., Sinden, J. & Torremans, P. Nat. Biotechnol. 24, 653–655 (2006).
Loring, J.F. & Campbell, C. Science 311, 1716–1717 (2006).
http://www.wicell.org/index.php?option=com_content&task=view&id=166&Itemid=170www.wicell.org (accessed March 2007).
Taymor, K.S., Scott, C.T. & Greely, H.T. Nat. Biotechnol. 24, 411–413 (2006).
Wadman, M. Nature 435, 272–273 (2005).
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The author gratefully acknowledges the review and comments of Insoo Hyun and George Q. Daley on earlier versions of this manuscript.
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Taylor, P. Research sharing, ethics and public benefit. Nat Biotechnol 25, 398–401 (2007). https://doi.org/10.1038/nbt0407-398
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DOI: https://doi.org/10.1038/nbt0407-398
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