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A common framework for health data governance standards

Nature Medicine volume 30, pages 26–29 (2024)Cite this article

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A six-tiered governance framework for federated health data, with varying levels of data access and sharing, is proposed to facilitate the use of health data held within more than one secure environment, while preserving privacy.

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Fig. 1: A federated network of interconnected safe platforms.

References

  1. UK Health Data Research Alliance & NHSX. Zenodo https://doi.org/10.5281/ZENODO.5767586 (2021).

  2. Grossman, R. L. Sci. Data 10, 120 (2023).

    Article  PubMed  PubMed Central  Google Scholar 

  3. Goldacre, B., Morley, J. & Hamilton, N. https://go.nature.com/3to5LPU (2022).

  4. The Royal Society. https://go.nature.com/3TAwiEb (2023).

  5. Wilkinson, M. et al. Sci. Data 3, 160018 (2016).

    Article  PubMed  PubMed Central  Google Scholar 

  6. Sweeney, L., Crosas, M. & Bar-Sinai, M. Technol. Sci. http://techscience.org/a/2015101601 (2015).

  7. Natali, S., Mantovani, S., Rendl, C. & Figuera, R. M. European Geosciences Union Assembly 2022 (EGU22) https://doi.org/10.5194/EGUSPHERE-EGU22-11073 (2022).

  8. Torabi, F. et al. Sci. Rep. 12, 16406 (2022).

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  9. Kerr, S. et al. PLoS Med. 19, e1003927 (2022).

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  10. Calvert, C. et al. Nat. Hum. Behav. 7, 529–544 (2023).

    Article  PubMed  PubMed Central  Google Scholar 

  11. Eradat Oskoui, S. et al. SSRN Electron. J. https://doi.org/10.2139/SSRN.4302481 (2022).

    Article  Google Scholar 

  12. Oechslin, P. In Advances in Cryptology–CRYPTO 2003. Lecture Notes in Computer Science (ed. Boneh, D.) vol. 2729, 617–630 (Springer, 2003).

  13. UK Ministry of Justice. https://go.nature.com/476h9xt (ADRUK, 2022).

  14. Jefferson, E. et al. J. Med. Internet. Res. 24, e40035 (2022).

    Article  PubMed  PubMed Central  Google Scholar 

  15. González-Galindo, J. et al. Zenodo https://doi.org/10.5281/ZENODO.7827723 (2023).

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Authors and Affiliations

  1. Population Data Science, Swansea University, Swansea, UK

    Fatemeh Torabi, Emma Squires, Chris Orton, Sharon Heys, David Ford, Ronan A. Lyons & Simon Thompson

  2. Dementias Platform UK, Oxford, UK

    Fatemeh Torabi, Emma Squires & Simon Thompson

  3. Health Data Research UK, London, UK

    Chris Orton & Simon Thompson

Authors
  1. Fatemeh Torabi
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  2. Emma Squires
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  3. Chris Orton
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  4. Sharon Heys
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  5. David Ford
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  6. Ronan A. Lyons
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  7. Simon Thompson
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Corresponding author

Correspondence to Fatemeh Torabi.

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Competing interests

S.T., D.F., R.A.L., F.T. and E.S. declare funding from Dementias Platform UK 2–Integrated Dementia Experimental Medicine (MR/T033371/1). R.F. and S.T. declare funding from SeRP and all organizations and research programs using the SeRP platform. S.T. declares funding from DAREUK TREFX and TELEPORT focusing on federated workloads and data access. All other authors declare no competing interests.

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Torabi, F., Squires, E., Orton, C. et al. A common framework for health data governance standards. Nat Med 30, 26–29 (2024). https://doi.org/10.1038/s41591-023-02686-w

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