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Parent versus child donor perceptions of the bone marrow donation experience

Bone Marrow Transplantation volume 52, pages 1338–1341 (2017)Cite this article

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Although the use of minors as HSC donors is considered medically safe1 and legally acceptable given that no alternative approach of comparable effectiveness exists, several published literature reviews and national organizations like the American Academy of Pediatrics have noted a lack of understanding of the physical/psychosocial effects of pediatric HSC donation and have called for investigations of such effects.2, 3, 4, 5, 6

Prior to our recently completed investigation of health-related quality-of-life (HRQoL) in sibling pediatric HSC donation (RDSafe: A Multi-Institutional Study of HSC Donor Safety and Quality Life), the few reviews and other published investigations of pediatric HSC donors’ experiences indicated that pediatric donors might experience a variety of psychosocial issues around donation—but limitations in prior investigations prevented definitive conclusions.3, 4, 5, 6, 7, 8, 9

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References

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Acknowledgements

This study was supported by a grant from the National Heart, Lung, and Blood Institute (NHLBI R01 HL085707). This manuscript was initially drafted by GES, has not been published previously and is not under consideration elsewhere and will not be submitted elsewhere while under consideration by this journal. No honorarium, grant or other form of payment was given to anyone to produce the manuscript. JWV holds the copyright and the trademark for the PedsQL and receives financial compensation from the Mapi Research Trust, which is a nonprofit research institute that charges distribution fees to for-profit companies that use the Pediatric Quality of Life Inventory.

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Authors and Affiliations

  1. Department of Medicine, University of Pittsburgh, Pittsburgh, PA, USA

    G E Switzer

  2. Department of Psychiatry, University of Pittsburgh, Pittsburgh, PA, USA

    G E Switzer, J Bruce & G Pastorek

  3. Department of Clinical and Translational Science, University of Pittsburgh, Pittsburgh, PA, USA

    G E Switzer

  4. Center for Health Equity Research and Promotion, Veterans Affairs Pittsburgh Healthcare System, Pittsburgh, PA, USA

    G E Switzer

  5. CIBMTR (Center for International Blood and Marrow Transplant Research), National Marrow Donor Program/Be The Match, Minneapolis, MN, USA

    D M Kiefer, H Kobusingye, R Drexler, R A M Besser, D L Confer & R J King

  6. Department of Medicine, CIBMTR (Center for International Blood and Marrow Transplant Research), Medical College of Wisconsin, Milwaukee, WI, USA

    M M Horowitz & B E Shaw

  7. Department of Donor Services, Sanquin Blood Supply, Amsterdam, The Netherlands

    S M van Walraven

  8. Department for Pediatric SCT, Leiden University Medical Center, Willem Alexander Children’s Hospital, Leiden, NL, USA

    S M van Walraven

  9. Center for Cancer Research, National Cancer Institute, Bethesda, MD, USA

    L Wiener

  10. Department of Psychology, Palo Alto University, Palo Alto, CA, USA

    W Packman

  11. Department of Pediatrics, Texas A&M University, College Station, TX, USA

    J W Varni

  12. Department of Landscape Architecture & Urban Planning, Center for Health Systems & Design, Texas A&M University, TX, USA

    J W Varni

  13. Division of Hematology, Oncology, and BMT, Children’s Hospital Los Angeles, Los Angeles, CA, USA

    M A Pulsipher

Authors
  1. G E Switzer
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  2. J Bruce
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  3. G Pastorek
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  4. D M Kiefer
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  6. R Drexler
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  7. R A M Besser
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  8. D L Confer
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  9. M M Horowitz
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  11. B E Shaw
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  12. S M van Walraven
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  13. L Wiener
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  14. W Packman
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  15. J W Varni
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  16. M A Pulsipher
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Corresponding author

Correspondence to G E Switzer.

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The authors declare no conflict of interest.

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Switzer, G., Bruce, J., Pastorek, G. et al. Parent versus child donor perceptions of the bone marrow donation experience. Bone Marrow Transplant 52, 1338–1341 (2017). https://doi.org/10.1038/bmt.2017.124

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