Kidney registries are essential to understanding the burden of kidney disease and facilitating the development of sustainable and effective programs for kidney disease prevention and care. Key barriers to implementation of registries at a global scale include funding and data quality. These issues warrant the attention of the global nephrology community.
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Acknowledgements
C.H.G. is funded by a PhD scholarship at the University of Dundee as part of the Multimorbidity PhD Programme for Health Professionals supported by the Wellcome Trust.
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F.J.C. leads the ISN’s SharE-RR initiative. A.K.B. received grant funding from the Canadian Institute of Health Research and Heart and Stroke Foundation of Canada in addition to consultancy fees from Amgen Canada, Bayer and Otsuka. D.N. is the director of informatics research at the UK Kidney Association. S.B. is chair of the Scottish Renal Registry. The other authors declare no competing interests.
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Grant, C.H., Caskey, F.J., Davids, M.R. et al. The global landscape of kidney registries: immense challenges and unique opportunities. Nat Rev Nephrol (2024). https://doi.org/10.1038/s41581-024-00833-1
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DOI: https://doi.org/10.1038/s41581-024-00833-1
