Social media has revolutionized health-care communication across all areas of medicine, and the field of oncology is no exception. When it comes to cancer research, social media has had a major impact. Here we highlight the role of social media in promoting patient-driven cancer research.
This is a preview of subscription content, access via your institution
Access options
Access Nature and 54 other Nature Portfolio journals
Get Nature+, our best-value online-access subscription
$29.99 / 30 days
cancel any time
Subscribe to this journal
Receive 12 print issues and online access
$209.00 per year
only $17.42 per issue
Buy this article
- Purchase on Springer Link
- Instant access to full article PDF
Prices may be subject to local taxes which are calculated during checkout
References
Attai, D. J. & Dizon, D. S. Social media and oncology: the time is now. JCO Oncol. Pract. 18, 525–527 (2022).
Attai, D. J. et al. Twitter social media is an effective tool for breast cancer patient education and support: patient-reported outcomes by survey. J. Med. Internet Res. 17, e188 (2015).
Parikh, D. A. et al. Characteristics of patients with ROS1+ cancers: results from the first patient-designed, global, pan-cancer ros1 data repository. JCO Oncol. Pract. 16, e183–e189 (2020).
Davies, K. D. et al. Comparison of molecular testing modalities for detection of ROS1 rearrangements in a cohort of positive patient samples. J. Thorac. Oncol. Off. Publ. Int. Assoc. Study Lung Cancer 13, 1474–1482 (2018).
Wagle, N. et al. The Metastatic Breast Cancer (MBC) project: Accelerating translational research through direct patient engagement. J. Clin. Oncol. 35, 1076–1076 (2017).
Loeser, A. L. et al. Treatment-related side effects and views about dosage assessment to sustain quality of life: Results of an advocate-led survey of patients with metastatic breast cancer (MBC). J. Clin. Oncol. 39, 1005–1005 (2021).
Anampa-Guzmán, A. et al. The rise of the expert patient in cancer: from backseat passenger to co-navigator. JCO Oncol. Pract. 18, 578–583 (2022).
Pew Research Group. Social media fact sheet. https://www.pewresearch.org/internet/fact-sheet/social-media/ (2021).
Cutrona, S. L. et al. Health information-seeking on behalf of others: characteristics of “surrogate seekers”. J. Cancer Educ. 30, 12–19 (2015).
Bangs, R., Lynn, J. M., Obot, E., Osborne, S. & Norris, K. Improving patient advocacy in NCI scientific steering committees and task forces. J. Natl. Cancer Inst. 114, 1059–1064 (2022).
Author information
Authors and Affiliations
Corresponding authors
Ethics declarations
Competing interests
The authors declare no competing interests.
Additional information
Related links
American Association for Cancer Research Scientist↔Survivor Program: https://www.aacr.org/patients-caregivers/patient-advocacy/scientist-survivor-program/
Cervivor: https://cervivor.org/
Count Me In: https://www.broadinstitute.org/count-me-in
GRASP: https://www.graspcancer.org
Patient-Centered Dosing Initiative: https://www.therightdose.org/
RISE: https://www.youngsurvival.org/be-an-advocate/be-a-ysc-advocate
The ROS1ders: https://www.theros1ders.org/
WECAN: https://wecanadvocate.eu/
Rights and permissions
About this article
Cite this article
Manochakian, R., Dizon, D.S. Using social media for patient-driven cancer research. Nat Rev Cancer 23, 1–2 (2023). https://doi.org/10.1038/s41568-022-00528-4
Published:
Issue Date:
DOI: https://doi.org/10.1038/s41568-022-00528-4
