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Communicating results to community residents: Lessons from recent ATSDR health investigations

Abstract

As a public health agency within the US Department of Health and Human Services, the Agency for Toxic Substances and Disease Registry (ATSDR) is responsible for implementing the health-related provisions of the Superfund Act. Much of its work is carried out to address health concerns in communities near sources of environmental contamination, usually in consultation with other local, state, and federal agencies. Over the last decade, ATSDR has considered, supported or conducted health investigations in a variety of different communities across the country. Communication with community residents has been an integral part of the process in all of these activities. The approach to communicating results needs to begin early by developing relationships and clarifying expectations, and it needs to remain flexible. Through examples taken from specific situations, we illustrate many of the lessons we have gained from trying to apply the principles of good community involvement to the design and conduct of health investigations and to the communication of study results.

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References

  • Agency for Toxic Substances and Disease Registry (ATSDR). Exposure Investigation for Dakota City/South Sioux City — Hydrogen Sulfide in Ambient Air, Dakota City/South Sioux City, NE. US Department of Health and Human Services, Atlanta, 1997.

  • Agency for Toxic Substances and Disease Registry (ATSDR). Kelly Air Force Base public health assessment, San Antonio, Bexar County, Texas. Draft for public comment. CERCLIS # TX2571724333, US Department of Health and Human Services, Atlanta, 1999a.

  • Agency for Toxic Substances and Disease Registry (ATSDR). Chattanooga Creek Area Cross-sectional Health Study, Chattanooga, Hamilton County, TN. US Department of Health and Human Services, Atlanta, 1999b.

  • Agency for Toxic Substances and Disease Registry (ATSDR). A panel study of acute respiratory outcomes on Staten Island, NY. Final Report, US Department of Health and Human Services, Atlanta, 2000a.

  • Agency for Toxic Substances and Disease Registry (ATSDR). Assessment of cancer incidence, USA Defense Depot, Memphis, TN. CERCLIS # TN4210020570, US Department of Health and Human Services, Atlanta, 2000b.

  • Agency for Toxic Substances and Disease Registry (ATSDR). Diagnostic evaluation of children with respiratory symptoms and potential exposure to diisocyanates from the Trinity American Corporation. Final Report, US Department of Health and Human Services, Atlanta, 2001.

  • Agency for Toxic Substances and Disease Registry (ATSDR). Childhood blood lead screening project, Anniston, Alabama. Final Report, US Department of Health and Human Services, Atlanta, 2002.

  • Bennett P. Understanding responses to risk: some basic findings. In: Bennett P., and Calman K. (Eds.). Risk Communication and Public Health. Oxford University Press, New York, NY, 1999, pp. 3–19.

    Google Scholar 

  • Berger S.A., Jones P.A., and White M.C. Exploratory assessment of respiratory illness among people living near a landfill. J Environ Health 2000: 62: 19–23.

    Google Scholar 

  • Bonham V.L., and Nathan V.R. Environmental public health research: engaging communities. Int J Hyg Environ Health 2002: 205: 11–18.

    Article  Google Scholar 

  • Brody C., and Lovera P. Community health studies: what can they give you? Everyone's Backyard 2000: Fall: 26–28.

    Google Scholar 

  • Brown P. Popular epidemiology revisited. Curr Sociol 1997: 45: 137–156.

    Article  Google Scholar 

  • Campagna D., Kathman S.J., Pierson R., Inserra S.G., Phifer B.L., Middleton D.C., Zarus G.M., and White M.C. Ambient hydrogen sulfide, total reduced sulfur, and hospital visits for respiratory diseases in northeast Nebraska, 1998–2000. J Expos Anal Environ Epidemiol 2004: 14: 180–187.

    Article  CAS  Google Scholar 

  • Claudio L., Torres T., Sanjurjo E., Sherman L.R., and Landrigan P.J. Environmental health sciences education — a tool for achieving environmental equity and protecting children. Environ Health Perspect 1998: 106(Suppl. 3): 849–855.

    PubMed  PubMed Central  Google Scholar 

  • Inserra S., Phifer B., Pierson R., and Campagna D. Community-based exposure estimates for hydrogen sulfide. J Expos Anal Environ Epidemiol 2002: 12: 124–129.

    Article  CAS  Google Scholar 

  • Inserra S.G., Phifer B.L., Anger W.K., Lewin M., Hilsdon R., and White M.C. Neurobehavioral evaluation for a community with chronic exposure to hydrogen sulfide gas. Environ Res 2004: 95: 53–61.

    Article  CAS  Google Scholar 

  • Institute of Medicine (IOM). The Future of the Public's Health in the 21st Century. National Academy of Sciences, Washington, DC, 2003.

  • Israel B.A., Schultz A.J., Parker E.A., and Becker A.B. Review of community-based research: assessing partnership approaches to improve public health. Annu Rev Publ Health 1998: 19: 173–202.

    Article  CAS  Google Scholar 

  • KonĂ© A., Sullivan M., Senturia K., Chrisman N., Ciske S., and Krieger J. Improving collaboration between researchers and communities. Publ Health Rep 2000: 115: 243–248.

    Article  Google Scholar 

  • Lyons R.A., and Wright D. Experiences in risk communication. In: Bennett P., and Calman K., (Eds.). Risk Communication and Public Health. Oxford University Press, New York, NY, 1999, pp. 108–116.

    Google Scholar 

  • Middleton D.C., White M.C., Williams L.W., and Myers L.A. Screening for asthma among children potentially exposed to diisocyanates (abstract). Am J Respir Crit Care Med 2001: 163(5): A562.

    Google Scholar 

  • Minkler M., and Wallerstein N., (Eds.). Community Based Participatory Research for Health. Jossey-Bass, A Wiley Co., Indianapolis, 2002.

    Google Scholar 

  • National Research Council. Environmental Epidemiology, Use of the Gray Literature and Other Data in Environmental Epidemiology, Vol. 2, National Academy Press, Washington, DC, 1997.

  • Noonan C.W., Kathman S.J., and White M.C. Prevalence estimates for MS in the United States and evidence of an increasing trend for women. Neurology 2002: 58: 136–138.

    Article  Google Scholar 

  • O'Fallon L.R., and Dearry A. Community-based participatory research as a tool to advance environmental health sciences. Environ Health Perspect 2002: 110(Suppl. 2): 155–159.

    Article  Google Scholar 

  • Orloff K.G., Batts-Osborne D., Kilgus T., Metcalf S., and Cooper M. Antibodies to toluene diisocyanate in an environmentally exposed population. Environ Health Perspect 1998: 106: 665–666.

    Article  CAS  Google Scholar 

  • Orloff K.G., Hewitt D.H., Metcalf S., Kathman S.J., Lewin M.D., and Turner W. Dioxin exposure in a residential community. J Expos Anal Environ Epidemiol 2001: 11: 352–358.

    Article  CAS  Google Scholar 

  • Peters R.G. A study of the factors determining perceptions of trust and credibility in environmental risk communication: the importance of overcoming negative stereotypes. Int Arch Occup Environ Health 1996: 68: 442–447.

    Article  CAS  Google Scholar 

  • Scherer C.W. Community network linkages during a health controversy. J Publ Health Manage Practice 2000: 6: 21–29.

    Article  CAS  Google Scholar 

  • Tinker T.L., Zook E., and Chapel T.J. Key challenges and concepts in health risk communication: perspectives of agency practitioners. J Publ Health Manage Practice 2001: 7: 67–75.

    Article  CAS  Google Scholar 

  • White M.C., Berger-Frank S.A., Middleton D.C., and Falk H. Addressing community concerns about asthma and air toxics. Environ Health Perspects 2002: 110(Suppl. 4): 561–564.

    Article  CAS  Google Scholar 

  • White M.C., Inserra S.G., Berger S.A., Campagna D., Phifer B.L., and Lybarger J.A. Health concerns for communities exposed to hydrogen sulfide — a perspective from two communities. Environ Epidemiol Toxicol 1999: 1(3–4): 236–240.

    Google Scholar 

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M.C. White, Centers for Disease Control and Prevention, 4770 Buford Highway, NE, K-55, Atlanta, GA 30341-3717, USA. Tel.: +1-770-488-3032; Fax: +1-770-488-4639. E-mail: MXW5@CDC.GOV

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Health Investigations Communications Work Group. Communicating results to community residents: Lessons from recent ATSDR health investigations. J Expo Sci Environ Epidemiol 14, 484–491 (2004). https://doi.org/10.1038/sj.jea.7500391

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