Parents of children diagnosed with Kawasaki Disease were surveyed to determine the amount of information they had received about Kawasaki Disease and coronary artery disease (CAD) since their child's acute illness and what further information they felt would be useful. A total of 78 surveys were mailed with 25 (32.0%) returned as undeliverable. Of the 53 delivered, 23(43.4%) completed surveys were returned. The mean length of time since diagnosis was 8.83 years with a range of 0.75 to 14 years. At the time of initial diagnosis, 82.6% of parents received information on Kawasaki Disease with 82.6% of the information in the form of discussions with doctors and nurses. Other forms included pamphlets (13.%) and personal research (17.4%). Following the acute illness, 82.6% of parents had not received any updated follow-up information while 4.3% had received information at least once every year and 4.3% once every three years from discussions with doctors or nurses; 8.7% obtained follow-up information through personal research. All of the parents surveyed (100%) felt it would be helpful to receive future updated information. Parents requested any information available on the diagnosis(34.8%); treatment (39.1%); and long-term effects (52.5%) of Kawasaki Disease and CAD. 78.3% believed the most useful information format would be a newsletter; other acceptable forms included pamphlets (56.5%); videos (34.8%); and personal discussion with medical personnel (30.4%). Summary: Although most parents receive information of Kawasaki Disease at the time of their child's acute illness, most have not received any follow-up information and all respondents would like continued updated information. The medical profession should keep parents better informed.