Melanoma Patient Network Europe has a lot of experience in connecting researchers with patients, including organizing patient-led conferences. The group’s founder explains how productive interaction can be transformative to research.
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Ryll, B. From good to great: what patients can do for your medical research. Nat Med 26, 1508 (2020). https://doi.org/10.1038/s41591-020-1097-8
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DOI: https://doi.org/10.1038/s41591-020-1097-8