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How bans on germline editing deprive patients with mitochondrial disease

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References

  1. 1.

    Adashi, E. Y. & Cohen, I. G. Cell 164, 832–835 (2016).

  2. 2.

    Cohen, I. G. & Adashi, E. Y. Nat. Rev. Genet. 17, 189–190 (2016).

  3. 3.

    Cohen, I. G. & Adashi, E. Y. J. Am. Med. Assoc. 316, 273–274 (2016).

  4. 4.

    Liang, P. et al. Protein Cell 6, 363–372 (2015).

  5. 5.

    The Hinxton Group. Statement on Genome Editing Technologies and Human Germline Genetic Modification. http://www.hinxtongroup.org/Hinxton2015_Statement.pdf (2015).

  6. 6.

    International Summit on Human Gene Editing. On Human Gene Editing: International Summit Statement http://www8.nationalacademies.org/onpinews/newsitem.aspx?RecordID=12032015a (2015).

  7. 7.

    National Academies of Sciences, Engineering, and Medicine. Human Genome Editing: Science, Ethics, and Governance (National Academies Press, Washington, DC, 2017).

  8. 8.

    Gorman, G. S., Grady, J. P. & Turnbull, D. M. N. Engl. J. Med. 372, 885–887 (2015).

  9. 9.

    Mitalipov, S., Amato, P., Parry, S. & Falk, M. J. Cell Rep. 7, 935–937 (2014).

  10. 10.

    Isasi, R., Kleiderman, E. & Knoppers, B. M. Science 351, 337–339 (2016).

  11. 11.

    Collins, F. S. & Gottlieb, S. N. Engl. J. Med. 379, 1393–1395 (2018).

  12. 12.

    Assisted Human Reproduction Act, S.C. 2004. http://laws-lois.justice.gc.ca/PDF/A-13.4.pdf (2018)

  13. 13.

    CNN. Rael defends claims of cloned baby. http://www.cnn.com/2003/ALLPOLITICS/01/03/cf.opinion.rael/ (2003).

  14. 14.

    Nisbet, M. C. Public Opin. Q. 68, 131–154 (2004).

  15. 15.

    Knoppers, B. M. et al. Regen. Med. 2, 3 (2017).

  16. 16.

    Ogbogu, U. et al. Healthc. Policy 13, 10–19 (2018).

  17. 17.

    Knoppers, B.M. et al. Consensus Statement: Gene Editing, Genetic Testing, and Reproductive Medicine in Canada. https://stemcellnetwork.ca//wp-content/uploads/2018/02/Consensus-Statement_.pdf (2018).

  18. 18.

    H.R.2880 – 104th Congress (1995–1996): Balanced Budget Downpayment Act, I. https://www.congress.gov/bill/104th-congress/house-bill/2880/text (1996).

  19. 19.

    Spivak, R. A., Cohen, I. G. & Adashi, E. Y. J. Law Health 30, 20–54 (2017).

  20. 20.

    Adashi, E. Y. & Cohen, I. G. Trends Mol. Med. 24, 449–457 (2018).

  21. 21.

    Cohen, I. G. Stanford Law Rev. 60, 1135–1196 (2007).

  22. 22.

    National Academies of Sciences, Engineering, and Medicine. Mitochondrial Replacement Technique: Ethical, Social, and Policy Considerations (National Academies Press, Washington, DC, 2016). .

  23. 23.

    Luo, S. et al. Proc. Natl Acad. Sci. USA 115, 13039–13044 (2018).

  24. 24.

    United Nations. Universal Declaration of Human Rights. http://www.un.org/en/universal-declaration-human-rights/ (2015).

  25. 25.

    Commission de l’Éthique en Science et en Technologie. Genetically Modified Babies: Ethical Issues Raised by the Genetic Modification of Germ Cells and Embryos: Summary and Recommendations. http://www.ethique.gouv.qc.ca/en/assets/documents/modification%20genetique/CEST_modif_gene_resume_AN_ACC.pdf (2019).

  26. 26.

    United Nations. International Covenant on Economic, Social and Cultural Rights. https://treaties.un.org/Pages/ViewDetails.aspx?src=TREATY&mtdsg_no=IV-3&chapter=4&clang=_en (2018).

  27. 27.

    Cohen, I.G. Patients with Passports: Medical Tourism, Law, and Ethics (Oxford Univ. Press, 2014).

  28. 28.

    Cohen, I. G. Indiana J. Glob. Leg. Stud. 25, 439–462 (2018).

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The authors declare no competing interests.

Correspondence to I. Glenn Cohen.

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