Skip to main content

Thank you for visiting nature.com. You are using a browser version with limited support for CSS. To obtain the best experience, we recommend you use a more up to date browser (or turn off compatibility mode in Internet Explorer). In the meantime, to ensure continued support, we are displaying the site without styles and JavaScript.

  • Comment
  • Published:

Transition from paediatric to adult-focused care: unresolved issues

Preparation for health-care transition from paediatric to adult-focused care must continue in young adulthood and requires coordination and an inter-disciplinary approach; however, the implementation of available tools and interventions remains challenging worldwide. Current practices fail to address issues related to patient safety, mental health, respect and equity, even in resource-rich societies.

This is a preview of subscription content, access via your institution

Access options

Buy this article

Prices may be subject to local taxes which are calculated during checkout

References

  1. Prestidge, C., Romann, A., Djurdjev, O. & Matsuda-Abedini, M. Utility and cost of a renal transplant transition clinic. Pediatr. Nephrol. 27, 295–302 (2012).

    Article  Google Scholar 

  2. Watson, A. R. et al. Transition from pediatric to adult renal services: a consensus statement by the International Society of Nephrology (ISN) and the International Pediatric Nephrology Association (IPNA). Pediatr. Nephrol. 26, 1753–1757 (2011).

    Article  Google Scholar 

  3. Raina, R., Wang, J., Sethi, S. K. & Ferris, M. Survey on health care transition services in pediatric nephrology. Clin. Exp.l Nephrol. 22, 206–207 (2018).

    Article  Google Scholar 

  4. Johnson, M. A. et al. The Relationship of transition readiness, self-efficacy, and adherence to preferred health learning method by youths with chronic conditions. J. Pediatr. Nurs. 30, 83–90 (2015).

    Article  Google Scholar 

  5. Hart, L. et al. Evaluation of the TRxANSITION Index–parent version for assessment of readiness to transition to adult care among youth with chronic conditions. J. Pediatr. Nurs. 58, 1–8 (2021).

    Article  Google Scholar 

  6. Zhong, Y. et al. Longitudinal self-management and/or transition readiness per the TRxANSITION Index among patients with chronic conditions in pediatric or adult care settings. J. Pediatr. 203, 361–370 (2018).

    Article  Google Scholar 

  7. Gerson, A. C. et al. Neurocognitive outcomes in children with chronic kidney disease: current findings and contemporary endeavors. Ment. Retard. Dev. Disabil. Res. Rev. 12, 208–215 (2006).

    Article  Google Scholar 

  8. Iyengar, A. & McCulloch, M. I. Paediatric kidney transplantation in under-resourced regions-a panoramic view. Pediatr. Nephrol. https://doi.org/10.1007/s00467-021-05070-3 (2021).

    Article  PubMed  PubMed Central  Google Scholar 

  9. Murray, P. D., Brodermann, M. H., Gralla, J., Wiseman, A. C. & Harden, P. N. Academic achievement and employment in young adults with end-stage kidney disease. J. Ren. Care 45, 29–40 (2019).

    Article  Google Scholar 

  10. Dickert, N. W. & Kass, N. E. Understanding respect: learning from patients. J. Med. Ethics. 35, 419–423 (2009).

    Article  CAS  Google Scholar 

Download references

Acknowledgements

We thank our patients and their caregivers, funding agencies (especially the Renal Research Institute and UNC Chapel Hill) and our global collaborators who provided insightful comments on the manuscript before submission: Tim Bertram, Cecily Betz, Mary Ciccarelli, Roselaine Charlucien-Koech, Nancy Cheak-Zamora, Pierre Cochat, Marcelo de Sousa Tavares, Launa Elliott, Cynthia Fair, Laura Hart, Karina Javalkar, Anna Kenan, Peter Kotanko, Elena Kulakova, John Mahan, Sudha Mannemuddhu, Mara Medeiros, Meaghan Nazareth, Roberto Pecoits-Filho, Rupesh Raina, Carl Seashore, Sahar Siddiqui, Michael Steiner, Miranda van Tilburg and Christel Wekon-Kemeni.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Maria E. Diaz-Gonzalez de Ferris.

Ethics declarations

Competing interests

The authors declare no competing interests.

Supplementary information

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Diaz-Gonzalez de Ferris, M.E., Ferris, M.T. & Filler, G. Transition from paediatric to adult-focused care: unresolved issues. Nat Rev Nephrol 17, 705–706 (2021). https://doi.org/10.1038/s41581-021-00476-6

Download citation

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1038/s41581-021-00476-6

Search

Quick links

Nature Briefing

Sign up for the Nature Briefing newsletter — what matters in science, free to your inbox daily.

Get the most important science stories of the day, free in your inbox. Sign up for Nature Briefing