Table 2 Item-factor loadings of the GCOS-18 (T0 Utrecht)

From: A validated PROM in genetic counselling: the psychometric properties of the Dutch version of the Genetic Counselling Outcome Scale

Item description (subscales) Factor 1 Factor 2 Factor 3 Factor 4 Factor 5 Factor 6
2. I can explain what the condition means to people in my family who may need to know (KC) 0.860 −0.007 −0.007 −0.004 0.006 −0.035
16. I can explain what the condition means to people in my family who may need to know (KC) 0.716 0.044 −0.003 −0.023 0.024 0.013
3. I understand the impact of the condition on my child(ren)/any child I may have (KC) 0.445 −0.145 0.087 −0.075 0.151 0.096
4. When I think about the condition in my family, I get upset (NE) −0.010 0.923 −0.009 0.033 0.039 −0.060
11. Having this condition in my family makes me feel anxious (NE) −0.033 0.631 −0.007 −0.088 −0.044 0.018
21. I feel guilty because I (might have) passed this condition on to my children (NE) 0.013 0.374 0.030 −0.019 0.040 0.084
18. I don’t know who else in my family might be at risk for this condition (UH) 0.003 −0.016 0.874 −0.043 0.038 −0.077
12. I don’t know if this condition could affect my other relatives (brothers, sisters, aunts, uncles, cousins) (UH) 0.021 0.027 0.593 0.047 −0.022 0.138
8. I feel positive about the future (HO) −0.105 −0.003 0.035 −0.850 −0.028 −0.011
20. I am able to make plans for the future (HO) −0.010 0.038 0.021 −0.575 0.075 0.030
9. I am able to cope with having this condition in my family (HO) 0.165 0.124 0.055 −0.559 −0.074 −0.047
19. I am hopeful that my children can look forward to a rewarding family life (HO) 0.102 −0.040 −0.137 −0.428 0.080 0.082
14. I understand the reasons why my doctor referred me to the clinical genetics service (KG) −0.093 0.009 −0.021 −0.005 0.771 0.029
23. I understand what concerns brought me to the clinical genetics service (KG) 0.049 0.059 −0.006 0.016 0.656 −0.013
1. I am clear in my own mind why I am attending the clinical genetics service (KG) 0.139 −0.040 0.065 −0.050 0.537 −0.032
10. I don’t know what could be gained from each of the options available for me (UT) −0.015 −0.040 −0.004 0.004 0.040 0.634
17. I don’t know what I can do to change how this condition affects me/my children (UT) −0.047 0.077 0.138 −0.069 −0.046 0.500
5. I don’t know where to go to get the medical help I/my family need(s) (UT) 0.218 0.193 −0.042 −0.010 0.004 0.456
Eigenvalues 4.24 2.38 1.66 1.20 1.08 0.96
% of variance 23.61 13.22 9.22 6.69 5.97 5.32
Removed items
6. I can see that good things have come from having this condition in my family
7. I can control how this condition affects my family
13. In relation to the condition in my family, nothing I decide will change the future for my children/any children I might have
15. I know how to get the non-medical help I/my family need(s) (e.g. educational, financial, social support)
22. I am powerless to do anything about this condition in my family
24. I can make decision about the condition that may change my child(ren)’s future/the future of any child(ren) I may have
  1. Subscales GCOS: UH uncertainty about heredity, HO hope, NE negative emotions, KC knowledge about the condition, KG knowledge about genetic services, UT uncertainty about the treatment. Factor loadings in bold show the items with the strongest factor loadings for each factor