Table 1 Characteristics of participants at T0 for the total sample and stratified by reason for referral

From: A validated PROM in genetic counselling: the psychometric properties of the Dutch version of the Genetic Counselling Outcome Scale

  Total sample (n = 2194) Affected counselees (n = 791) Unaffected counselees (n = 1044) Parents of referred children (n = 359)
Hospital
 University Medical Center Groningen 1326 (60.4%) 513 (38.7%) 638 (48.1%) 175 (13.2%)
 University Medical Center Utrecht 868 (39.6%) 278 (32.0%) 406 (46.8%) 184 (21.2%)
Age 1,2 47.8 (14.8) 51.6 (14.5) 47.3 (15.0) 40.8 (11.6)
Gender
 Female 1524 (69.5%) 548 (36.0%) 696 (45.7%) 280 (18.4%)
 Male 670 (30.5%) 243 (36.3%) 348 (51.9%) 79 (11.8%)
Marital status 1
 Living together without children 717 (32.9%) 313 (43.7%) 360 (50.2%) 44 (6.1%)
 Living together with children 966 (44.4%) 271 (28.1%) 441 (45.7%) 254 (26.3%)
 Living alone with children 113 (5.2%) 34 (30.1%) 49 (43.4%) 30 (26.5%)
 Single 249 (11.4%) 117 (47.0%) 117 (47.0%) 15 (6.0%)
 Different situation 132 (6.1%) 50 (37.9%) 68 (51.5%) 14 (10.6%)
Education level 1
 Basic (primary school, secondary school, lower vocational education) 434 (20.3%) 167 (38.5%) 221 (50.9%) 46 (10.6%)
 Intermediate (middle vocational education) 861 (40.3%) 299 (34.7%) 400 (46.5%) 162 (18.8%)
 High (higher vocational education, university) 839 (39.3%) 298 (35.5%) 400 (47.7%) 141 (16.8%)
Employment status 1
 Working 1135 (58.2%) 321 (28.3%) 607 (53.5%) 207 (18.2%)
 Studying 72 (3.7%) 24 (33.3%) 45 (62.5%) 3 (4.2%)
 Unemployed 314 (16.1%) 112 (35.7%) 126 (40.1%) 76 (24.2%)
 Unable to work (disabled) 115 (5.9%) 70 (60.9%) 32 (27.8%) 13 (11.3%)
 Retired 274 (14.1%) 142 (51.8%) 118 (43.1%) 14 (5.1%)
 Voluntary work 40 (2.1%) 21 (52.5%) 13 (32.5%) 6 (15.0%)
Type of disease
 Cancer 1097 (50.0%) 458 (41.8%) 618 (56.3%) 21 (1.9%)
 Heart diseases 462 (21.1%) 151 (32.7%) 278 (60.2%) 33 (7.1%)
 Neurological disorders 264 (12.0%) 79 (29.9%) 73 (27.7%) 112 (42.4%)
 Other type of diseases (e.g. congenital syndromes, intellectual disability, prenatal pathology) 371 (16.9%) 103 (27.8%) 75 (20.2%) 193 (52.0%)
  1. 1 = this variable has missing values; 2 = mean and SD are shown