Article | Published:

Food and health

Dietary responses to a multiple sclerosis diagnosis: a qualitative study

European Journal of Clinical Nutrition (2018) | Download Citation

Abstract

Background/objectives

Multiple sclerosis (MS) is an immune-mediated disease with no known cure and insufficient evidence to support a special therapeutic diet to alter symptom management or disease progression. Several studies have reported dietary changes made by people with MS, but there has been limited investigation into experiences surrounding diet in those recently diagnosed. This study explored responses to diet after a recent diagnosis of MS in people living in Western Australia.

Subjects/methods

Eleven adults with MS (mean time since diagnosis 8 months) participated in semi-structured interviews focusing on responses to diet since MS diagnosis. Interviews were transcribed, coded and analysed using grounded theory principles.

Results

Three theme responses emerged; (1) the perceived incompatibility of lack of/or generalised dietary advice with disease seriousness at the time of diagnosis; (2) extensive personal research and information seeking with difficulty judging credibility, and (3) self-experimentation with diet to either control MS symptoms or to cure MS.

Conclusions

Given the seriousness of the disease, there is a perceived gap in dietary information provided at the time of diagnosis. Healthcare professionals should address concerns with alternative therapeutic diets advertised to treat or cure MS, and clearly convey the reasoning for the general healthy dietary recommendations. This would better align advice with the perceptions about the role of diet in MS, assist people with MS in need of information and minimise dietary self-experimentation. Future research should explore the importance of diet for those who have had MS for a longer period of time.

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Acknowledgements

We would like to thank the members of MSWA for their participation, and the General Manager of Member Services, Sue Shapland, for her input in developing the interview guide.

Funding

LJB is funded by a MSWA Postdoctoral Research Fellowship. The School of Public Health Curtin University provided funding for this study.

Author information

Affiliations

  1. School of Public Health, Curtin University, Perth, WA, Australia

    • Rebecca D. Russell
    • , Lucinda J. Black
    • , Jill L. Sherriff
    •  & Andrea Begley

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Conflict of interest

The authors declare that they have no conflict of interest.

Corresponding author

Correspondence to Andrea Begley.

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DOI

https://doi.org/10.1038/s41430-018-0252-5