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Family reflections: parents and caregivers of people with FASD: what research do we need?

Pediatric Research (2022)Cite this article

These professionals, like us, were interpreting his behavioral differences as purposeful and psychologically motivated. They, like us, didn’t consider that his behavioral differences were examples of “can’t” do it, vs. “won’t.”

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References

  1. May, P. A. et al. Prevalence of fetal alcohol spectrum disorders in 4 US communities. JAMA 319, 474–482 (2018).

    Article  Google Scholar 

  2. Popova, S., Lange, S., Shield, K., Burd, L. & Rehm, J. Prevalence of fetal alcohol spectrum disorder among special subpopulations: a systematic review and meta-analysis. Addiction 114, 1150–1172 (2019). PMID: 30831001; PMCID: PMC6593791.

    Article  Google Scholar 

  3. Wozniak, J. R., Riley, E. P. & Charness, M. E. Clinical presentation, diagnosis, and management of fetal alcohol spectrum disorder. Lancet Neurol. 18, 760–770 (2019). PMID: 31160204; PMCID: PMC6995665.

    Article  Google Scholar 

  4. Olson, H. C., Oti, R., Gelo, J. & Beck, S. “Family matters:” fetal alcohol spectrum disorders and the family. Dev. Disabil. Res Rev. 15, 235–249 (2009). PMID: 19731388.

    Article  Google Scholar 

  5. Petrenko, C. L. M., Pandolfino, M. E. & Roddenbery, R. The association between parental attributions of misbehavior and parenting practices in caregivers raising children with prenatal alcohol exposure: a mixed-methods study. Res Dev. Disabil. 59, 255–267 (2016). PMID: 27662038; PMCID: PMC5159297.

    Article  Google Scholar 

  6. Connor, P. D. & Streissguth, A. P. Effects of prenatal exposure to alcohol across the life span. Alcohol Health Res. World 20, 170–174 (1996). PMID: 31798126; PMCID: PMC6876509.

    PubMed  PubMed Central  Google Scholar 

  7. Smith, V. C., Matthias, P., Senturias, Y. N., Turchi, R. M. & Williams, J. F. Fetal alcohol research caring for patients with prenatal alcohol exposure: a needs assessment. J. Popul. Ther. Clin. Pharmacol. 24, e25–e39 (2017). 10.22374/1710-6222.24.1.4. PMID: 28186713.

    PubMed  Google Scholar 

  8. Turchi, R. M. & Smith, V. C., Committee on Substance Use and Prevention; Council on Children with Disabilities. The role of integrated care in a medical home for patients with a fetal alcohol spectrum disorder. Pediatrics 142, e20182333 (2018). PMID: 30201625.

    Article  Google Scholar 

  9. Petrenko, C. L., Tahir, N., Mahoney, E. C. & Chin, N. P. Prevention of secondary conditions in fetal alcohol spectrum disorders: identification of systems-level barriers. Matern. Child Health J. 18, 1496–1505 (2014). PMID: 24178158; PMCID: PMC4007413.

    Article  Google Scholar 

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  1. Training Director, Families Affected by FASD, Florence, MA, USA

    Adrienne Ehlert Bashista

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  1. Adrienne Ehlert Bashista
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Correspondence to Adrienne Ehlert Bashista.

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Bashista, A.E. Family reflections: parents and caregivers of people with FASD: what research do we need?. Pediatr Res (2022). https://doi.org/10.1038/s41390-021-01926-4

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