Abstract
To ensure that biobanks reach their full potential, better engagement of the public is needed. The authors argue that the principle of reciprocity should be at the core of these efforts.
This is a preview of subscription content, access via your institution
Relevant articles
Open Access articles citing this article.
-
Better governance starts with better words: why responsible human tissue research demands a change of language
BMC Medical Ethics Open Access 01 September 2022
-
Better governance, better access: practising responsible data sharing in the METADAC governance infrastructure
Human Genomics Open Access 26 April 2018
-
Ethical sharing of health data in online platforms – which values should be considered?
Life Sciences, Society and Policy Open Access 21 August 2017
Access options
Subscribe to this journal
Receive 12 print issues and online access
$189.00 per year
only $15.75 per issue
Rent or buy this article
Prices vary by article type
from$1.95
to$39.95
Prices may be subject to local taxes which are calculated during checkout
References
Gaskell, G. & Gottweis, H. Biobanks need publicity. Nature 471, 159–171 (2011).
Pardo, R., Midden, C. & Miller, J. D. Attitudes towards biotechnology in the European Union. J. Biotechnol. 98, 9–24 (2002).
Godard, B., Marshall, J. & Laberge, C. Community engagement in genetic research: results of the first public consultation for the Quebec CARTaGENE Project.” Community Genet. 10, 147–158 (2007).
Lemke, A. A. et al. Public and biobank participant attitudes toward genetic research participation and data sharing. Public Health Genomics 13, 368–377 (2010).
Høyer, K. Donors perceptions of consent to and feedback from biobank research: time to acknowledge diversity? Public Health Genomics 13, 345–352 (2009).
Meulenkamp, T. M. et al. Communication of biobanks' research results: what do (potential) participants want? Am. J. Med. Genet. A 152, 2482–2492 (2010).
Vermeulen, E. et al. Connective tissue: cancer patients' attitudes towards medical research using excised (tumour) tissue. BioSocieties 8 Aug 2011 (doi:10.1057/biosoc.2011.9).
Kaufman, D. et al. Public opinion about the importance of privacy in biobank research. Am. J. Hum. Genet. 85, 643–654 (2009).
Gottweis, H. et al. Biobanks and European public opinion: explaining heterogeneity. University of Vienna [online], (2011).
Gaskell, G. et al. Europeans and biotechnology in 2010. Winds of change? European Commission [online], (2010).
Pentz, R. D., Billot, L. & Wendler, D. Research on stored biological samples: views of African American and white American cancer patients. Am. J. Med. Genet. 140, 733–739 (2006).
European Science Foundation. Population surveys and biobanking. European Science Foundation. [online], (2008).
Tupasela, A. et al. Attitudes towards biomedical use of tissue sample collections, consent, and biobanks among Finns. Scand. J. Public Health 38, 46–52 (2010).
Acknowledgements
H.G. was supported by grants from the Austrian Genome Project (GEN-AU) for the projects GATiB (Genome Austrian Tissue Bank) and PrivatGen and by the European Union Programme for Research and Development (FP 7) project Biobanking and Biomolecular Research Infrastructure (BBMRI) and by the National Research Foundation of Korea Grant funded by the Korean Government (NRF-2010-330-B00169). G.G. was funded by the Sensitive Technologies and European Public Ethics (STEPE) funded project and the Science in Society Programme of the European Commission's FP7.
Author information
Authors and Affiliations
Corresponding author
Ethics declarations
Competing interests
The authors declare no competing financial interests.
Rights and permissions
About this article
Cite this article
Gottweis, H., Gaskell, G. & Starkbaum, J. Connecting the public with biobank research: reciprocity matters. Nat Rev Genet 12, 738–739 (2011). https://doi.org/10.1038/nrg3083
Published:
Issue Date:
DOI: https://doi.org/10.1038/nrg3083
This article is cited by
-
Better governance starts with better words: why responsible human tissue research demands a change of language
BMC Medical Ethics (2022)
-
Consent for governance in the ethical use of organoids
Nature Cell Biology (2018)
-
Better governance, better access: practising responsible data sharing in the METADAC governance infrastructure
Human Genomics (2018)
-
The ECOUTER methodology for stakeholder engagement in translational research
BMC Medical Ethics (2017)
-
Ethical sharing of health data in online platforms – which values should be considered?
Life Sciences, Society and Policy (2017)