Skip to main content

Thank you for visiting nature.com. You are using a browser version with limited support for CSS. To obtain the best experience, we recommend you use a more up to date browser (or turn off compatibility mode in Internet Explorer). In the meantime, to ensure continued support, we are displaying the site without styles and JavaScript.

  • Comment
  • Published:

Shared decision-making in HCM

Nature Reviews Cardiology volume 14, pages 125–126 (2017)Cite this article

Subjects

Shared decision-making (SDM) between physicians and patients is a necessary element of care in hypertrophic cardiomyopathy (HCM), particularly for decisions concerning prophylactic implantable defibrillators to prevent sudden death; however, SDM has much less relevance in making eligibility versus disqualification decisions for competitive athletes with HCM.

This is a preview of subscription content, access via your institution

Access options

Buy this article

  • Purchase on Springer Link
  • Instant access to full article PDF
Buy now

Prices may be subject to local taxes which are calculated during checkout

References

  1. Elliott, P. M. et al. 2014 ESC guidelines on diagnosis and management of hypertrophic cardiomyopathy. Eur. Heart J. 35, 2733–2779 (2014).

    Article  Google Scholar 

  2. Maron, B. J. & Maron, M. S. Contemporary strategies for risk stratification and prevention of sudden death with the implantable defibrillator in hypertrophic cardiomyopathy. Heart Rhythm 13, 1155–1165 (2016).

    Article  Google Scholar 

  3. Maron, B. J. et al. How hypertrophic cardiomyopathy became a contemporary treatable genetic disease with low mortality: shaped by 50 years of clinical research and practice. JAMA Cardiol. 1, 98–105 (2016).

    Article  Google Scholar 

  4. Barry, M. J. & Edgman-Levitan, S. Shared decision-making — the pinnacle of patient-centered care. N. Engl. J. Med. 366, 780–781 (2012).

    Article  CAS  Google Scholar 

  5. Hess, E. P. et al. Implementation of shared decision-making in cardiovascular care: past, present, and future. Circ. Cardiovasc. Qual. Outcomes 7, 797–803 (2014).

    Article  Google Scholar 

  6. Maron, B. J. et al. Demographics and epidemiology of sudden deaths in young competitive athletes: from the United States National Registry. Am. J. Med. 129, 1170–1177 (2016).

    Article  Google Scholar 

  7. Maron, B. J. et al. Eligibility and disqualification recommendations for competitive athletes with cardiovascular abnormalities: Task Force 3: hypertrophic cardiomyopathy, arrhythmogenic ventricular cardiomyopathy and other cardiomyopathies and myocarditis. J. Am. Coll. Cardiol. 66, 2362–2371 (2015).

    Article  Google Scholar 

  8. Maron, B. J. et al. Implantable cardioverter-defibrillators and prevention of sudden cardiac death in hypertrophic cardiomyopathy. JAMA 298, 405–412 (2007).

    CAS  Google Scholar 

  9. Maron, B. J. Saving lives one at a time. JAMA Cardiol. 1, 387–388 (2016).

    Article  Google Scholar 

  10. Maron, B. J. et al. Competitive athletes with cardiovascular disease — the case of Nicholas Knapp. N. Engl. J. Med. 339, 1632–1635 (1998).

    Article  CAS  Google Scholar 

Download references

Author information

Authors and Affiliations

  1. Division of Cardiology, Hypertrophic Cardiomyopathy Institute, Tufts Medical Center, 800 Washington Street, Box &70, Boston, 02111, MA, USA

    Barry J. Maron & Martin S. Maron

  2. Division of Cardiovascular Diseases and Internal Medicine, Mayo Clinic, 200 First Street SW, Rochester, 55905, Minnesota, USA

    Rick A. Nishimura

Authors
  1. Barry J. Maron
    View author publications

    You can also search for this author in PubMed Google Scholar

  2. Rick A. Nishimura
    View author publications

    You can also search for this author in PubMed Google Scholar

  3. Martin S. Maron
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to Barry J. Maron.

Ethics declarations

Competing interests

The authors declare no competing financial interests.

Supplementary information

Supplementary information S1 (figure)

Contrasting applications in hypertrophic cardiomyopathy (HCM) of shared decision-making to high-risk candidates for primary prevention defibrillators and to competitive athletes. (PDF 259 kb)

Supplementary information S2 (table)

Competitive athletes who died suddenly with hypertrophic cardiomyopathy and had been allowed to continue sports participation after diagnosis (PDF 88 kb)

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Maron, B., Nishimura, R. & Maron, M. Shared decision-making in HCM. Nat Rev Cardiol 14, 125–126 (2017). https://doi.org/10.1038/nrcardio.2017.6

Download citation

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1038/nrcardio.2017.6

This article is cited by

Search

Advanced search

Quick links

Nature Briefing

Sign up for the Nature Briefing newsletter — what matters in science, free to your inbox daily.

Get the most important science stories of the day, free in your inbox. Sign up for Nature Briefing