Analysis of five years of controlled access and data sharing compliance at the International Cancer Genome Consortium

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  1. 1

    Shabani, M., Knoppers, B.M. & Borry, P. EMBO Mol. Med. 7, 507–509 (2015).

  2. 2

    Rothstein, M.A. Hastings Cent. Rep. 10.1002/hast.539 (14 December 2015).

  3. 3

    Joly, Y., Dove, E.S., Knoppers, B.M., Bobrow, M. & Chalmers, D. PLOS Comput. Biol. 8, e1002549 (2012).

  4. 4

    Kaye, J. & Hawkins, N. Genome Med. 6, 4 (2014).

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The authors would like to acknowledge the valuable contributions of the following individuals: (M.H. Zawati, E. Kleiderman, S.O.M. Dyke, D. So and E. Dove (DACO consultants); A. Cambon-Thomsen, R. Yoshida, T. Kaan, P. Nicolas, M. Bobrow and L. Lyman Rodriguez (IDAC consultants); M. Fukuma, K. Wu, D. Gross and S. Badr (OICR/ICGC Web Development team); L. Stein, H. Nahaal and V. Ferretti (ICGC DCC); J. Jennings and T.J. Hudson (ICGC Secretariat); S. Birko and P3G (research assistance); and FRSQ 30719 and OICR (financial support).

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Correspondence to Yann Joly.

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Yann Joly is the Data Access Officer responsible for managing the DACO and Emilie de Vries-Seguin is his assistant; both are financially compensated for this work by the Ontario Institute for Cancer Research (OICR). No additional interests to declare.

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