Commentary | Published:

Unpatients—why patients should own their medical data

Nature Biotechnology volume 33, pages 921924 (2015) | Download Citation

For the benefits of digital medicine to be fully realized, we need not only to find a shared home for personal health data but also to give individuals the right to own them.

Access optionsAccess options

Rent or Buy article

Get time limited or full article access on ReadCube.

from$8.99

All prices are NET prices.

References

  1. 1.

    The United States of Fitness. Wall Street Journal (26 May; accessed 5 July 2015).

  2. 2.

    Can big data help you get a good night's sleep? Fortune (29 June 2015).

  3. 3.

    Cell 157, 241–253 (2014).

  4. 4.

    et al. Science 348, aaa0698 (2015).

  5. 5.

    HHMI. Your viral infection history from a single drop of blood (4 June; accessed 7 July 2015).

  6. 6.

    The Wisdom of the Body (W.W. Norton & Company, Inc., New York, NY, USA, 1932).

  7. 7.

    , & Cell Syst. 1, 8–13 (2015).

  8. 8.

    The Office of the National Coordinator for Health Information Technology (ONC). Report to Congress April 2015: Report on Health Information Blocking. (Health IT, 9 April; accessed 7 July 2015).

  9. 9.

    J. Am. Med. Inform. Assoc. 20, 593–594 (2013).

  10. 10.

    Robert Wood Johnson Foundation. Individual access to medical records: 50 state comparison. Health Information & the Law (24 September 2013; accessed 7 July 2015). .

  11. 11.

    The Patient Will See You Now (Basic Books; New York, NY, 2015).

  12. 12.

    The blockbuster drug of the century: an engaged patient. HL7 Standards. (28 August 2012; accessed 6 July 2015).

  13. 13.

    A quick guide to the worst corporate hack attacks (18 March; accessed 6 July 2015). .

  14. 14.

    How to take charge of your medical records. Wall Street Journal. (29 June 2015). .

  15. 15.

    . Accessed 7 July 2015.

  16. 16.

    The future of the web looks a lot like bitcoin. Spectrum IEEE (1 July; accessed 2 July 2015).

  17. 17.

    Apple watch release news: survey finds 80 percent of US employees would give health data from wearables to employers. iDigitalTimes (2 February; accessed 7 July 2015).

Download references

Acknowledgements

Special thanks to J. Robinson, N. DiNiro and D. Maizenberg, members of the UnPatient team, for assistance; US National Institutes of Health grant NIH/NCATS 8 UL1 TR001114 for supporting E.J.T.; M. Miller for preparation; and J. Hightower for assistance with graphics.

Author information

Affiliations

  1. Leonard J. Kish is at Unpatient.org, Denver, Colorado, USA.

    • Leonard J Kish
  2. Eric J. Topol is at The Scripps Research Institute, and Scripps Health, La Jolla, California, USA.

    • Eric J Topol

Authors

  1. Search for Leonard J Kish in:

  2. Search for Eric J Topol in:

Competing interests

The authors declare no competing financial interests.

Corresponding author

Correspondence to Eric J Topol.

About this article

Publication history

Published

DOI

https://doi.org/10.1038/nbt.3340

Newsletter Get the most important science stories of the day, free in your inbox. Sign up for Nature Briefing