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  • Original Article
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Clinical nutrition, enteral and parenteral nutrition

Analysis of the Spanish national registry for pediatric home enteral nutrition (NEPAD): implementation rates and observed trends during the past 8 years

European Journal of Clinical Nutrition volume 67, pages 318–323 (2013)Cite this article

Subjects

Abstract

Background/Objectives:

The home enteral nutrition (HEN) provides nutritional support to children with chronic diseases who are nutritionally compromised and allows them to be discharged more quickly from hospitals. In 2003, a web-based registry (Nutrición Enteral Pediátrica Ambulatoria y Domiciliaria, Pediatric Ambulatory and Home Enteral Nutrition -NEPAD-) was created with the objective of gathering information about pediatric HEN practices in Spain.

AIM:

The aim of this study was to report the implementation of the NEPAD (Nutrición Enteral Pediátrica Ambulatoria y Domiciliaria, Pediatric Ambulatory and Home Enteral Nutrition) registry of pediatric HEN in Spain and to analyze data evolution trends from 2003 to 2010.

Subjects/Methods:

The data from the Spanish NEPAD registry were analyzed according to the following variables: demographic data, diagnosis, indication for HEN, nutritional support regime and administration route.

Results:

Over the study period, 952 patients (1048 episodes) from 20 Spanish hospitals were included in the NEPAD registry. The most frequent indication for HEN was decreased oral intake (64%), and neurological disease was the most prevalent illness. HEN was delivered via a nasogastric tube in 573 episodes (54.7%), by gastrostomy in 375 episodes (35.8%), oral feeding in 77 episodes (7.3%) and by jejunal access in 23 episodes (2.2%). Significant differences in the mode of administration were observed based on the pathology of the child (χ2, P<0.0001). The cyclic feeding was the most widely used technique for the administration of HEN. Most of the patients used a pump and a polymeric formula. Transition to oral feeding was the primary reason for discontinuation of this type of support.

Conclusions:

Since the NEPAD registry was established in Spain, the number of documented patients has increased more than 25-fold. Many children with chronic illness benefit from HEN, mainly those suffering from neurological diseases.

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Author information

Author notes

  1. C Pedrón-Giner and V M Navas-López: These authors contributed equally to this paper.

Authors and Affiliations

  1. Division of Pediatric Gastroenterology, Hepatology and Nutrition, Hospital Infantil Universitario Niño Jesús, Madrid, Spain

    C Pedrón-Giner & A B Martínez-Zazo

  2. Pediatric Gastroenterology, Hepatology and Nutrition Unit, Hospital Materno Infantil, Málaga, Spain

    V M Navas-López & J Blasco-Alonso

  3. Department of Pediatrics, School of Medicine, Hospital Clínico Universitario, University of Valencia, Valencia, Spain

    C Martínez-Costa

  4. Pediatric Gastroenterology and Nutrition Unit, Complejo Hospitalario de Navarra, Pamplona, Spain

    F Sánchez-Valverde

  5. Pediatric Nutrition Unit, Hospital Doce de Octubre, Madrid, Spain

    J M Moreno-Villares

  6. Nutritional Support Unit, Hospital Vall d́ Hebrón, Barcelona, Spain

    S Redecillas-Ferreiro

  7. Pediatric Nutrition Unit, Hospital General Universitario Gregorio Marañón, Madrid, Spain

    M J Canals-Badía

  8. Pediatric Gastroenterology and Nutrition Unit, Hospital Son Espases, Mallorca, Spain

    A Rosell-Camps

  9. Pediatric Gastroenterology, Hepatology and Nutrition Unit, Hospital Virgen de la Arrixaca, Murcia, Spain

    D Gil-Ortega

  10. Division of Pediatric Gastroenterology, Hepatology and Nutrition, Hospital Sant Joan de Déu, Barcelona, Spain

    L Gómez-López & R García-Romero

  11. Pediatric Gastroenterology and Nutrition Unit, Hospital Universitario Puerta de Hierro, Madrid, Spain

    C Gutierrez-Junquera

  12. Pediatric Gastroenterology and Nutrition Unit, Hospital Universitario, Albacete, Spain

    E M Balmaseda-Serrano

  13. Pediatric Gastroenterology and Nutrition Unit, Hospital Universitario Central de Asturias, Oviedo, Spain

    C Bousoño-García

  14. Pediatric Gastroenterology and Nutrition Unit, Hospital Clínico Universitario, Valladolid, Spain

    J M Marugán-Miguelsanz

  15. Pediatric Gastroenterology and Nutrition Unit, Complejo Hospitalario Universitario Insular Materno Infantil, Las Palmas de Gran Canaria, Spain,

    L Peña-Quintana & D González-Santana

  16. Pediatric Gastroenterology and Nutrition Unit, Hospital Torrecárdenas, Almería, Spain

    E López-Ruzafa

  17. Hospital Los Arcos, San Javier, Murcia, Spain

    F J Chicano-Marín

  18. Hospital General de la Palma, La Palma, Spain

    R Cabrera-Rodriguez

  19. Hospital Universitario de Canarias, Tenerife, Spain

    M Murray-Hurtado

  20. Hospital Infanta Leonor, Madrid, Spain

    B Pérez-Moneo

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  1. C Pedrón-Giner
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Corresponding author

Correspondence to C Pedrón-Giner.

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Pedrón-Giner, C., Navas-López, V., Martínez-Zazo, A. et al. Analysis of the Spanish national registry for pediatric home enteral nutrition (NEPAD): implementation rates and observed trends during the past 8 years. Eur J Clin Nutr 67, 318–323 (2013). https://doi.org/10.1038/ejcn.2013.8

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