Requests for participation of unrelated stem cell donors in research transplant protocols are becoming more frequent. World Marrow Donor Association calls on donor registries to participate in research activities. Here, we discuss various implications of research participation and make some recommendations as how to make this possible.
This is a preview of subscription content, access via your institution
Subscribe to this journal
Receive 12 print issues and online access
$259.00 per year
only $21.58 per issue
Rent or buy this article
Get just this article for as long as you need it
Prices may be subject to local taxes which are calculated during checkout
Egeland T, Lie J, Persson U, Raymond J, Mueller C . Donor and liability insurance of donor registries, donor centers, and collection centers—recommendations. Bone Marrow Transplant 2004; 33: 467–470.
Bakken R, van Walraven A-M, Egeland T . Donor commitment and patient needs. Bone Marrow Transplant 2004; 33: 225–230.
Rosenmayr A, Hartwell L, Egeland T . Informed consent—suggested procedures for informed consent for unrelated haematopoietic stem cell donors at various stages of recruitment, donor evaluation, and donor workup. Bone Marrow Transplant 2003; 31: 539–545.
Hurley CK, Raffoux C . World Marrow Donor Association: international standards for unrelated hematopoietic stem cell donor registries. Bone Marrow Transplant 2004; 34: 103–110.
Cleaver SA, Warren P, Kern M, Hurley CK, Raffoux C, Keller J et al. Donor work-up and transport of bone marrow—recommendations and requirements for a standardized practice throughout the world from the Donor Registries and Quality Assurance Working Groups of the World Marrow Donor Association (WMDA). Bone Marrow Transplant 1997; 20: 621–629.
van Walraven SM, Nicoloso-de Faveri G, Axdorph-Nygell UAI, Douglas KW, Jones DA, Lee SJ et al. Family donor care management: principles and recommendations. Bone Marrow Transplant (e-pub ahead of print 21 December 2009; doi:10.1038/bmt.2009.354).
We thank Effie Petersdorf, Jon J. van Rood and other WMDA members, as well as The National Marrow Donor Program Committee on Donors as Research Subjects, for valuable comments.
Rights and permissions
About this article
Cite this article
King, R., Confer, D., Greinix, H. et al. Unrelated hematopoietic stem cell donors as research subjects. Bone Marrow Transplant 46, 10–13 (2011). https://doi.org/10.1038/bmt.2010.37
- hematopoietic stem cell transplantation
- donor research subject
This article is cited by
Audits of collection and apheresis centers: guidelines by the World Marrow Donor Association Working Group Quality and Regulation
Bone Marrow Transplantation (2019)
A review of the haematopoietic stem cell donation experience: is there room for improvement?
Bone Marrow Transplantation (2014)
Donors as research subjects: a challenge
Bone Marrow Transplantation (2012)