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Personal Genomes

When consent gets in the way

As the prospect of personal genomes for all promises to revolutionize personal health records, Patrick Taylor says that mandating consent does not protect privacy or ensure public benefit.

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  1. Mandl, K. D. & Kohane, I. S. N. Engl. J. Med. 358, 1732–1737 (2008).

    CAS  Article  Google Scholar 

  2. Manos, D. Microsoft joins lawmakers, activists to demand patient privacy rights (Healthcare IT News, 18 October 2007).




  6. Ness, R. B. J. Am. Med. Assoc. 298, 2164–2170 (2007).

    CAS  Article  Google Scholar 

  7. Ingelfinger, J. R. & Drazen, J. M. N. Engl. J. Med. 350, 1452–1453 (2004).

    CAS  Article  Google Scholar 

  8. Huang, N., Shih, S.-F., Chang, H.-Y. & Chou, Y.-J. BMC Health Serv. Res. 7, 18 (2007).

    Article  Google Scholar 

  9. Westin, A. F. How the Public Views Privacy and Health Research (Institute of Medicine, 2008).

    Google Scholar 

  10. Lowrance, W. W. & Collins, F. S. Science 317, 600–602 (2007).

    CAS  Article  Google Scholar 

  11. Homer, N. et al. PLoS Genet. 4, e1000167 (2008).

    Article  Google Scholar 

  12. Gostin, L. O. & Hodge, J. G. Minn. Law Rev. 86, 1439–1479 (2002).

    PubMed  Google Scholar 

  13. Breese, P. & Burman, W. J. Am. Med. Assoc. 293, 1593–1594 (2005).

    CAS  Google Scholar 

  14. Churchill, L. Daedalus 128, 253–274 (1999).

    PubMed  Google Scholar 

  15. Jonas, H. Daedalus 98, 219–247 (1969).

    Google Scholar 

  16. Beauchamp, T. L. & Childress, J. F. Principles of Biomedical Ethics (Oxford Univ. Press, New York, 2001).

    Google Scholar 

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Taylor, P. When consent gets in the way. Nature 456, 32–33 (2008).

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