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Stem Cell Donation

Informed Consent – suggested procedures for informed consent for unrelated haematopoietic stem cell donors at various stages of recruitment, donor evaluation, and donor workup

Bone Marrow Transplantation volume 31, pages 539–545 (2003)Cite this article

Summary:

The Ethics Working Group of the World Marrow Donor Association (WMDA) was established to address the increasing and complex number of ethical issues surrounding unrelated haematopoietic stem cell donation where the selected donor and recipient reside in different countries. This paper considers the topic of informed donor consent, but recognises that the recommendations contained within the paper may be subject to cultural variances in interpretation, and to adjustment to meet the legal requirements of individual countries. Nevertheless, the extent of international cooperation establishes sufficient common denominators for the recommendations to be widely adhered to in the interests of best practice.

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Acknowledgements

Members of the Ethics Working Group of WMDA are acknowledged for their contribution to this document. The manuscript has been reviewed and approved by the WMDA Board.

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Authors and Affiliations

  1. Austrian Bone Marrow Donors, Vienna, Austria

    A Rosenmayr

  2. The Anthony Nolan Bone Marrow Trust, London, United Kingdom

    L Hartwell

  3. The Norwegian Bone Marrow Donor Registry, Oslo, Norway

    T Egeland

Authors
  1. A Rosenmayr
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  2. L Hartwell
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  3. T Egeland
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on behalf of the Ethics Working Group of the World Marrow Donor Association

Appendix

Appendix

Checklist

(See Table 1, Table 2, Table 3)

Table 1 CHECKLISTa FOR USE AT TIME OF INITIAL RECRUITMENT ONTO A VOLUNTEER REGISTRY
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Table 2 CHECKLISTa FOR USE AT TIME OF CONFIRMATORY TYPING OF A VOLUNTEER
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Table 3 CHECKLISTa FOR USE AT TIME OF CONSULTATION PRIOR TO HAEMATOPOIETIC STEM CELL DONATION
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Rosenmayr, A., Hartwell, L., Egeland, T. et al. Informed Consent – suggested procedures for informed consent for unrelated haematopoietic stem cell donors at various stages of recruitment, donor evaluation, and donor workup. Bone Marrow Transplant 31, 539–545 (2003). https://doi.org/10.1038/sj.bmt.1703851

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