Box 3. Conditions of GAIN data access acknowledged by approved data users and their institutions
From the following article
The GAIN Collaborative Research Group
Nature Genetics 39, 1045 - 1051 (2007) Published online: 29 August 2007
doi:10.1038/ng2127
- Use of GAIN data will be limited for a given data set to the parameters described within the GAIN database for appropriate research use of the data.
- Uses of the data must be consistent with federal, state and local laws and any relevant institutional policies.
- Data will not be used to identify or contact individual participants from any GAIN study.
- Individual participant data will be kept secure and will not be distributed.
- Names of approved users and titles of their projects will be listed on the open access GAIN website.
- Approved users will submit regular reports on research progress, including any matters involving data security.
- GAIN-supported data and the conclusions drawn directly from them should remain freely available, without requirement for licensing or undue intellectual property encumbrances.
- No abstracts, presentations or publications based on GAIN data will be submitted or presented by anyone other than the original study investigators for 9 months after the GAIN project data set is released for research use.
- Presentations and publications after this 9-month period will acknowledge GAIN, the investigators who contributed the phenotype data and DNA samples from their original study and the primary funding organization that supported the contributing study.
