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Managing sensitive phenotypic data and biomaterial in large-scale collaborative psychiatric genetic research projects: practical considerations

Molecular Psychiatry volume 17, pages 1180–1185 (2012)Cite this article

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Abstract

Large-scale collaborative research will be a hallmark of future psychiatric genetic research. Ideally, both academic and non-academic institutions should be able to participate in such collaborations to allow for the establishment of very large samples in a straightforward manner. Any such endeavor requires an easy-to-implement information technology (IT) framework. Here we present the requirements for a centralized framework and describe how they can be met through a modular IT toolbox.

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Acknowledgements

This work is supported by the Deutsche Forschungsgemeinschaft through the Clinical Research Group 241 ‘Genotype-phenotype relationships and neurobiology of the longitudinal course of psychosis’ (http://www.kfo241.de; grant number SCHU 1603/5-1).

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Authors and Affiliations

  1. Department of Medical Informatics, University Medical Center Göttingen, Göttingen, Germany

    S Y Demiroglu, D Skrowny, M Quade, J Schwanke, J J Jakob, O Rienhoff & K Helbing

  2. Department of Psychiatry and Psychotherapy, Section on Psychiatric Genetics, University Medical Center Göttingen, Göttingen, Germany

    M Budde, V Gullatz, D Reich-Erkelenz, P Falkai, U Heilbronner & T G Schulze

  3. Department of Psychiatry and Psychotherapy, Ludwigs-Maximilians-University, München, Germany

    P Falkai

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  1. S Y Demiroglu
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  2. D Skrowny
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  4. J Schwanke
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  5. M Budde
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  6. V Gullatz
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  8. J J Jakob
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  9. P Falkai
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  10. O Rienhoff
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  11. K Helbing
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  12. U Heilbronner
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  13. T G Schulze
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Corresponding authors

Correspondence to S Y Demiroglu or T G Schulze.

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The authors declare no conflict of interest.

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Supplementary Information accompanies the paper on the Molecular Psychiatry website

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Demiroglu, S., Skrowny, D., Quade, M. et al. Managing sensitive phenotypic data and biomaterial in large-scale collaborative psychiatric genetic research projects: practical considerations. Mol Psychiatry 17, 1180–1185 (2012). https://doi.org/10.1038/mp.2012.11

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