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Advice to governments: scientific give and take

Abstract

Judging by the intensity of its media coverage, the uses and abuses of genetics are of great public concern worldwide. The application of genetics has the potential to exert multifarious influences on individuals, families and society. Governments rightly seek advice on how evolving genetic knowledge should influence public policy, and clearly, scientists should participate in this process. But how does the system work? Here, we compare our experiences of serving on governmental advisory committees, and explore the benefits and pitfalls of such an undertaking.

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Figure 1: The UK advisory framework around the Human Genetics Commission.

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Correspondence to Veronica van Heyningen.

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DATABASES

OMIM

asthma

Creutzfeld–Jakob disease

diabetes

FURTHER INFORMATION

Agriculture, Environment and Biotechnology Commission

Ethical and Policy Issues in Research Involving Human Participants

Eubios

European Group on Ethics

Federal Advisory Committee Act

Food Standards Agency

Howard Hughes Medical Institute

HUGO

Human Fertilisation and Embryology Authority

Human Genetics Commission

Human Reproductive Cloning Bill

HumGen

Medical Research Council

National Bioethics Advisory Commission

National Institutes of Health

Nuffield Council on Bioethics

President's Council on Bioethics

Science and Technology Committees

The Wellcome Trust

UNESCO

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van Heyningen, V., Cox, D. Advice to governments: scientific give and take. Nat Rev Genet 3, 631–636 (2002). https://doi.org/10.1038/nrg860

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