Analysis of five years of controlled access and data sharing compliance at the International Cancer Genome Consortium

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The authors would like to acknowledge the valuable contributions of the following individuals: (M.H. Zawati, E. Kleiderman, S.O.M. Dyke, D. So and E. Dove (DACO consultants); A. Cambon-Thomsen, R. Yoshida, T. Kaan, P. Nicolas, M. Bobrow and L. Lyman Rodriguez (IDAC consultants); M. Fukuma, K. Wu, D. Gross and S. Badr (OICR/ICGC Web Development team); L. Stein, H. Nahaal and V. Ferretti (ICGC DCC); J. Jennings and T.J. Hudson (ICGC Secretariat); S. Birko and P3G (research assistance); and FRSQ 30719 and OICR (financial support).

Author information


  1. Centre of Genomics and Policy, Faculty of Medicine, Department of Human Genetics, McGill University, Montreal, Quebec, Canada.

    • Yann Joly
    •  & Bartha M Knoppers
  2. Public Population Project in Genomics and Society (P3G), Montreal, Quebec, Canada.

    • Emilie de Vries-Seguin
  3. Faculty of Law, University of Tasmania, Hobart, Tasmania, Australia.

    • Don Chalmers
  4. Ontario Institute for Cancer Research, Toronto, Ontario, Canada.

    • B F Francis Ouellette
    •  & Joseph Yamada
  5. Department of Medical Genetics, University of Cambridge, Cambridge, UK.

    • Martin Bobrow


  1. the ICGC Data Access Compliance Office and the ICGC International Data Access Committee

    Full lists of members and affiliations appear in the Supplementary Note.


    Competing interests

    Yann Joly is the Data Access Officer responsible for managing the DACO and Emilie de Vries-Seguin is his assistant; both are financially compensated for this work by the Ontario Institute for Cancer Research (OICR). No additional interests to declare.

    Corresponding author

    Correspondence to Yann Joly.

    Supplementary information

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    1. 1.

      Supplementary Note

      Supplementary Note.