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Allografting

Management of related donor care: a European survey

Bone Marrow Transplantation volume 45, pages 97–101 (2010)Cite this article

Abstract

Donating BM or peripheral stem cells is a challenging process that requires a considerable commitment on the part of the donating individual, especially when there is a relationship between donor and recipient. In order to develop a better understanding of related donor management, the research subcommittee of the European Group for Blood and Marrow Transplantation-Nurses Group (EBMT-NG) designed a questionnaire to survey European transplant centres. This questionnaire investigated several key areas, including guidelines, patient information, donor consent and follow-up services. It was distributed to a sample of delegates (N=150) at the 2005 meeting of the EBMT-NG. Guidelines for the information given to patients were primarily from local (33, 52%), and a combination of local and national (13, 21%) sources. Transplant information was predominantly given to related donors by the recipient's transplant team (36, 57%). A total of 33 (52%) centres indicated that donors were also consented by transplant doctors, whereas 16 (25%) identified that consent was obtained by doctors who were not connected with the transplant team. At present, there is a lack of recognized standardized guidelines for the management of related donors. The development of such guidelines would assist in maintaining patient autonomy, confidentiality and access to accurate and objective information.

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Authors and Affiliations

  1. Department of Clinical Haematology, Haematology Nursing Research and Practice Development, University College Hospital, University College London Hospitals NHS Foundation Trust, London, UK

    S Clare

  2. Department of Clinical Haematology, Academic Medical Centre, Amsterdam, The Netherlands

    A Mank

  3. Centre for Clinical Haematology, Nottingham University Hospitals NHS Trust, Nottingham, UK

    R Stone

  4. Haematology and Transplant Unit, Christie Hospital, Manchester, UK

    M Davies

  5. Haematology Department Radboud University, Nijmegen Medical Centre, Nijmegen, The Netherlands

    C Potting

  6. Department of Haematology, Imperial College, Hammersmith Hospital, London, UK

    J F Apperley

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  1. S Clare
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  2. A Mank
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  3. R Stone
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  4. M Davies
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  5. C Potting
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  6. J F Apperley
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on behalf of the Research Sub-committee of the EBMT Nurses Group

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Correspondence to S Clare.

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Clare, S., Mank, A., Stone, R. et al. Management of related donor care: a European survey. Bone Marrow Transplant 45, 97–101 (2010). https://doi.org/10.1038/bmt.2009.117

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